Donate
Facebook
Instagram
Mail
New Diagnosis
Research
Engage
Media
Advocacy
Conference
2025 Conference
Past Conferences
2024 Conference
2023 Conference
2022 Conference
2021 Conference
Board of Directors
Emily’s Fund
In Memory
Media
News, podcasts and videos featuring stories from the CSS community
When Autumn Comes Podcast: Carissa
Listen Now
Benji & Ellah at TedXDetroit
Listen Now
Coffin-Siris Syndrome Awareness with Joelle Lahlouh
Listen Now
The Atlantic: The Ones We Sent Away: Jennifer Senior
Listen Now
When Autumn Comes Podcast: Georgette
Listen Now
Ivy’s League Spectrum News 1 Central New York
Listen Now
Jennifer Senior on Fresh Air
Listen Now
When Autumn Comes Podcast: Dr. Sammy Vergan
o
Listen Now